{"version":"https://jsonfeed.org/version/1","title":"Future & Hope","home_page_url":"https://future-hope.org","description":"Future & Hope","author":{"name":"Future & Hope"},"items":[{"id":"https://future-hope.org/f/7-years","html_content":"

Seven years ago today our sweet baby girl had a biopsy of her kidney done. It wasn’t long until we got the diagnosis. The one her nephrologist was afraid of. The worst case scenario for her…Dense Deposit Disease. Her imm...

","url":"https://future-hope.org/f/7-years","title":"7 YEARS","summary":"Seven years ago today our sweet baby girl had a biopsy of her kidney done. It wasn’t long until we got the diagnosis. The one her nephrologist was afraid of. The worst case scenario for her…Dense Deposit Disease. Her imm...","date_modified":"2022-02-10T00:00:00Z"},{"id":"https://future-hope.org/f/thankful","html_content":"

Happy thanksgiving!  I am so thankful and my heart is so full today!

","url":"https://future-hope.org/f/thankful","title":"THANKFUL","summary":"Happy thanksgiving!  I am so thankful and my heart is so full today!","date_modified":"2021-11-26T00:00:00Z"},{"id":"https://future-hope.org/f/then-and-now","html_content":"

Last night was family night with the Oak Mountain band.  They present the halftime show to their families at the end of band camp. Then there are food trucks for us to get dinner and have a huge picnic together.  Last ye...

","url":"https://future-hope.org/f/then-and-now","title":"THEN AND NOW","summary":"Last night was family night with the Oak Mountain band.  They present the halftime show to their families at the end of band camp. Then there are food trucks for us to get dinner and have a huge picnic together.  Last ye...","date_modified":"2019-08-07T23:00:00Z"},{"id":"https://future-hope.org/f/merry-christmas-and-happy-new-year","html_content":"

The past couple months have been very busy and very promising for Ashley Ames.\n

","url":"https://future-hope.org/f/merry-christmas-and-happy-new-year","title":"MERRY CHRISTMAS AND HAPPY NEW YEAR","summary":"The past couple months have been very busy and very promising for Ashley Ames.\n","date_modified":"2018-12-29T00:00:00Z"},{"id":"https://future-hope.org/f/port-problems","html_content":"

When Ashley Ames went for her last infusion, the doctor had ordered it to go through the port.  AA was nervous because it hadn't quite been 3 weeks since the surgery and it was still a little tender.  In her usual fashio...

","url":"https://future-hope.org/f/port-problems","title":"PORT PROBLEMS","summary":"When Ashley Ames went for her last infusion, the doctor had ordered it to go through the port.  AA was nervous because it hadn't quite been 3 weeks since the surgery and it was still a little tender.  In her usual fashio...","date_modified":"2018-10-17T22:00:00Z"},{"id":"https://future-hope.org/f/the-port-is-in","html_content":"

On Monday, Dr. Fathallah called to give the good news that the Eculizumab is working incredibly well.  The protein in her urine has gone from 8 (near failure) to 0.5 (near normal) with just 4 treatments!  The doctors in ...

","url":"https://future-hope.org/f/the-port-is-in","title":"THE PORT IS IN","summary":"On Monday, Dr. Fathallah called to give the good news that the Eculizumab is working incredibly well.  The protein in her urine has gone from 8 (near failure) to 0.5 (near normal) with just 4 treatments!  The doctors in ...","date_modified":"2018-09-13T22:00:00Z"},{"id":"https://future-hope.org/f/so-many-answered-prayers","html_content":"

If two of you agree on earth about anything they ask, it will be done for them by my Father in heaven.  - Matthew 18:19\n

","url":"https://future-hope.org/f/so-many-answered-prayers","title":"SO MANY ANSWERED PRAYERS","summary":"If two of you agree on earth about anything they ask, it will be done for them by my Father in heaven.  - Matthew 18:19\n","date_modified":"2018-08-31T22:00:00Z"},{"id":"https://future-hope.org/f/someone-pushed-the-easy-button","html_content":"

Ashley Ames had her second treatment of Eculizumab on Thursday morning.  This time we had a scheduled appointment for 8 am at the Infusion Clinic across the street from Children's Hospital.  The staff there were very kin...

","url":"https://future-hope.org/f/someone-pushed-the-easy-button","title":"SOMEONE PUSHED THE EASY BUTTON!","summary":"Ashley Ames had her second treatment of Eculizumab on Thursday morning.  This time we had a scheduled appointment for 8 am at the Infusion Clinic across the street from Children's Hospital.  The staff there were very kin...","date_modified":"2018-08-17T22:00:00Z"},{"id":"https://future-hope.org/f/the-roller-coaster-ride-to-the-first-infusion","html_content":"

This week has been full of ups and downs!  \n

","url":"https://future-hope.org/f/the-roller-coaster-ride-to-the-first-infusion","title":"THE ROLLER COASTER RIDE TO THE FIRST INFUSION","summary":"This week has been full of ups and downs!  \n","date_modified":"2018-08-11T22:00:00Z"},{"id":"https://future-hope.org/f/biopsy-results","html_content":"

Ashley Ames checked into the hospital Thursday morning but didn't get the biopsy until after 1.  Since they were later getting her to the OR, the results wouldn't be ready until Friday.   It was an easy biopsy and she re...

","url":"https://future-hope.org/f/biopsy-results","title":"BIOPSY RESULTS","summary":"Ashley Ames checked into the hospital Thursday morning but didn't get the biopsy until after 1.  Since they were later getting her to the OR, the results wouldn't be ready until Friday.   It was an easy biopsy and she re...","date_modified":"2018-08-03T19:00:00Z"},{"id":"https://future-hope.org/f/love-lifted-me","html_content":"

This morning, I packed an overnight bag for myself and Ashley Ames and headed to Children's Hospital.  The doctor wanted to see AA and get labs done because she has had swollen ankles and eyes since I picked her up from ...

","url":"https://future-hope.org/f/love-lifted-me","title":"LOVE LIFTED ME","summary":"This morning, I packed an overnight bag for myself and Ashley Ames and headed to Children's Hospital.  The doctor wanted to see AA and get labs done because she has had swollen ankles and eyes since I picked her up from ...","date_modified":"2018-07-31T19:00:00Z"},{"id":"https://future-hope.org/f/philippians-44-7","html_content":"

Always be full of joy in the Lord. I say it again—rejoice! Let everyone see that you are considerate in all you do. Remember, the Lord is coming soon. Don’t worry about anything; instead, pray about everything. Tell God ...

","url":"https://future-hope.org/f/philippians-44-7","title":"PHILIPPIANS 4:4-7","summary":"Always be full of joy in the Lord. I say it again—rejoice! Let everyone see that you are considerate in all you do. Remember, the Lord is coming soon. Don’t worry about anything; instead, pray about everything. Tell God ...","date_modified":"2018-07-30T19:00:00Z"},{"id":"https://future-hope.org/f/do-not-let-your-countenance-fall","html_content":"

On June 15th, Ashley Ames turned 13!  She's officially a teenager.  Her birthday made me reminisce about her precious life.  Those who know me well know that I am not a worrier, nor am I very emotional.  But those though...

","url":"https://future-hope.org/f/do-not-let-your-countenance-fall","title":"DO NOT LET YOUR COUNTENANCE FALL","summary":"On June 15th, Ashley Ames turned 13!  She's officially a teenager.  Her birthday made me reminisce about her precious life.  Those who know me well know that I am not a worrier, nor am I very emotional.  But those though...","date_modified":"2018-06-20T18:00:00Z"},{"id":"https://future-hope.org/f/wrong-turn","html_content":"

It's been over a year since I've updated AA's site. She didn't have to see the doctor much in 2017 and only had a handful of tests done.  Everything was very stable.  Even though her kidneys haven't changed much, Ashley ...

","url":"https://future-hope.org/f/wrong-turn","title":"WRONG TURN","summary":"It's been over a year since I've updated AA's site. She didn't have to see the doctor much in 2017 and only had a handful of tests done.  Everything was very stable.  Even though her kidneys haven't changed much, Ashley ...","date_modified":"2018-04-06T18:00:00Z"},{"id":"https://future-hope.org/f/healthy-girl-happy-mama","html_content":"

This is a big week for AA...cheer tryouts! She's worked really hard and, make it or not, I'm so proud of her! Because of cheer clinic, I took her to get her bloodwork done on Monday. That way Dr. Fathallah would have the...

","url":"https://future-hope.org/f/healthy-girl-happy-mama","title":"HEALTHY GIRL, HAPPY MAMA","summary":"This is a big week for AA...cheer tryouts! She's worked really hard and, make it or not, I'm so proud of her! Because of cheer clinic, I took her to get her bloodwork done on Monday. That way Dr. Fathallah would have the...","date_modified":"2017-02-23T03:00:00Z"},{"id":"https://future-hope.org/f/growing","html_content":"

Dr. Fathallah said that Ashley Ames looked like she had grown a lot since December, and she was right. She's an inch taller and about 5 pounds heavier. We chatted about how things have been and how good AA looks while we...

","url":"https://future-hope.org/f/growing","title":"GROWING","summary":"Dr. Fathallah said that Ashley Ames looked like she had grown a lot since December, and she was right. She's an inch taller and about 5 pounds heavier. We chatted about how things have been and how good AA looks while we...","date_modified":"2016-03-30T23:00:00Z"},{"id":"https://future-hope.org/f/merry-christmas","html_content":"

Christmas is just around the corner and 2015 is coming to a close. As it does, I look back to how much has changed in our lives over the past 11 months. It still amazes me to know that we, as a family, have experienced o...

","url":"https://future-hope.org/f/merry-christmas","title":"MERRY CHRISTMAS!","summary":"Christmas is just around the corner and 2015 is coming to a close. As it does, I look back to how much has changed in our lives over the past 11 months. It still amazes me to know that we, as a family, have experienced o...","date_modified":"2015-12-23T23:00:00Z"},{"id":"https://future-hope.org/f/a-month-of-change-one-constantgods-blessing","html_content":"

The month of August brought change for us as a family. Namely, a new house! It was about this time last year that we decided to get our house in Indian Valley ready to sell. The majority of the work was completed in Dece...

","url":"https://future-hope.org/f/a-month-of-change-one-constantgods-blessing","title":"A MONTH OF CHANGE & ONE CONSTANT...GOD'S BLESSING","summary":"The month of August brought change for us as a family. Namely, a new house! It was about this time last year that we decided to get our house in Indian Valley ready to sell. The majority of the work was completed in Dece...","date_modified":"2015-09-13T22:00:00Z"},{"id":"https://future-hope.org/f/first-month-without-dr-appt","html_content":"

We made it through July without having to go to Children's to see the nephrologist! Ashley Ames had her bloodwork done at the end of the month and Dr. Fathallah called us with the results. Her renal panel (kidney functio...

","url":"https://future-hope.org/f/first-month-without-dr-appt","title":"FIRST MONTH WITHOUT DR APPT","summary":"We made it through July without having to go to Children's to see the nephrologist! Ashley Ames had her bloodwork done at the end of the month and Dr. Fathallah called us with the results. Her renal panel (kidney functio...","date_modified":"2015-08-03T22:00:00Z"},{"id":"https://future-hope.org/f/oh-happy-day","html_content":"

Today was a long day at the doctor's office for us.  Ashley Ames had to go to the lab for bloodwork twice because the order was incorrect the first time.  Then there was the wait for the results...\nBoy, was it worth the ...

","url":"https://future-hope.org/f/oh-happy-day","title":"OH HAPPY DAY!","summary":"Today was a long day at the doctor's office for us.  Ashley Ames had to go to the lab for bloodwork twice because the order was incorrect the first time.  Then there was the wait for the results...\nBoy, was it worth the ...","date_modified":"2015-06-24T22:00:00Z"},{"id":"https://future-hope.org/f/hope-brings-good-news","html_content":"

Dr. Fathallah's nurse is a lovely woman named Hope. I've never thought this was a coincidence. Today Hope gave us the good news that Ashley Ames' latest bloodwork looked great! Her iron levels and red blood cell count we...

","url":"https://future-hope.org/f/hope-brings-good-news","title":"HOPE BRINGS GOOD NEWS","summary":"Dr. Fathallah's nurse is a lovely woman named Hope. I've never thought this was a coincidence. Today Hope gave us the good news that Ashley Ames' latest bloodwork looked great! Her iron levels and red blood cell count we...","date_modified":"2015-06-02T22:00:00Z"},{"id":"https://future-hope.org/f/treatments","html_content":"

April has been a busy month for Ashley Ames.  She's had several doctor visits and lots of labwork done.  Her kidneys still seem to be functioning but the protein has increased in her urine.  Her bloodwork showed that she...

","url":"https://future-hope.org/f/treatments","title":"TREATMENTS","summary":"April has been a busy month for Ashley Ames.  She's had several doctor visits and lots of labwork done.  Her kidneys still seem to be functioning but the protein has increased in her urine.  Her bloodwork showed that she...","date_modified":"2015-04-30T15:00:00Z"},{"id":"https://future-hope.org/f/dense-deposit-disease","html_content":"

On the night of Thursday, January 15, 2015, Matt noticed that Ashley Ames' ankles were swollen.  We knew she hadn't injured herself so I called the pediatrician the next morning.  The nurse called me back within the hour...

","url":"https://future-hope.org/f/dense-deposit-disease","title":"DENSE DEPOSIT DISEASE","summary":"On the night of Thursday, January 15, 2015, Matt noticed that Ashley Ames' ankles were swollen.  We knew she hadn't injured herself so I called the pediatrician the next morning.  The nurse called me back within the hour...","date_modified":"2015-03-25T15:00:00Z"}]}