Together we can

Our daughter was diagnosed with Dense Deposit Disease in February of 2015 at the age of 9.  As she has grown, the disease has progressed.  It is our goal to keep her and her kidneys as healthy as possible until a cure can be found.

When she was first diagnosed with Dense Deposit Disease, our daughter was able to take an oral steroid and immunosuppressant.  She remained stable for 3 years.  Since 2018, she has been taking blood pressure medicine and receiving infusions.  

As an Ulra-Rare Disease, DDD has no FDA approved treatment.  Because of that, medications can be difficult to come by and/or very costly.  We focus on raising money to help those impacted by Dense Deposit Disease and C3G with a special focus on families in Alabama.